Monday, June 14, 2010

Back to PCH

To All:

I know some of you have been following Ethan's story through other sources, so some of this may be repetitive, but I thought it was a good time to provide an update.

Last week, Ethan was discharged from Phoenix Children's Hospital (PCH) again -- this time with a PICC, or central line, which was providing his feeding into his blood stream and bypassing his gut so that he could get nutrients directly into his blood and gain some weight.  

Yesterday (Sunday) afternoon, we had to rush him to the PCH Emergency Room due to a fever.  Things went from bad to worse in the ER, with his fever running over 105, he began to twitch and convulse which is probably the hardest thing I've ever had to watch in my lifetime.  After drawing blood samples and stabilizing the fever (at 102/103 -- the lowest they could get it), we were admitted.  Things didn't improve after admission too much, and then we had the preliminary results of the blood test.

There is a risk when you have a central line (line to the heart essentially) that you can get a blood infection. Ethan now has a blood infection, and it was a long night.  He is on oxygen, his fever is high and not breaking, his blood pressure is high, and his heart rate is inconsistent.  He is being constantly monitored at this time, and all we can do is provide fluids and antibiotics in hopes that this gets resolved.  

The little guy needs all the prayers in the world!!  He is breathing SO fast and he is really struggling.  Please pray that he heals quickly and that we can get him stabilized and then get him off to either Boston Children's or St. Louis Children's hospital as soon as possible. 

Thank you all for following our story, and thank you for all of the support.  

God Bless, 


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